Welcome to the ACMCRN Calendar of Events!
This page is your go-to resource for all upcoming special events, support meetings, and engaging opportunities hosted by ACMCRN. Our Google Calendar integration ensures you have the most current information on event dates, times, and details right at your fingertips.
Weekly Peer Support Meetings
ACMCRN Men’s Support Group – Led by Lew Sypher
Day & Time: Tuesdays at 7:00 PM EST
Zoom Link: Join Here
Host: Lew Sypher
This group provides a safe and welcoming space for men with Arachnoiditis to connect, share experiences, and support one another.
ACMCRN Open Peer Support Group – Led by Lori Verton
Day & Time: Wednesdays at 6:30 PM EST
Zoom Link: Join Here
Meeting ID: 838 2456 4297 | Passcode: 578287
Host: Lori Verton
A judgment-free, informal space open to everyone affected by Arachnoiditis, including patients, caregivers, and spouses.
Days and Times: Starts February 20th and runs every Sunday at 1:00 PM EST, Tuesday AT 3:00 AM EST, and Thursdays at 5:00 PM EST (8-week series)
Cost: Free – Open to all!
Zoom Link: Join Here
Host: Tich Mukanga, Founder of Pain2Power.org
Workshop Topics:
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Creating Your Sanctuary
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Boundaries as Protection
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The Art of Self-Kindness
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Finding Your Ground
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Time as Medicine
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Body Listening
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Emotional Safety
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The Breath Journey
Each session will include:
Presentation (20 mins)
Demonstration & Practice (20 mins)
Discussion & Integration (20 mins)
Hack Your Brain, Hack Your Pain – Hosted by Scott Groves
Day: Fridays (Ongoing)
Time: 7:00 PM EST
Zoom Link: Join Here
Meeting ID: 820 9959 3604 | Passcode: 083776
Host: Scott Groves
Scott Groves shares neuroscience-based techniques that helped him regain mobility and joy. Topics include neuroplasticity, movement, micro-goals, and mindfulness for pain management.
Live Event with Ilana Jacqueline – Rare Disease Week Special Presentation
Notice of Postponement: Live Event with Ilana Jacqueline – Rare Disease Week Special Presentation
Dear Arachnoiditis Community Members,
We regret to inform you that our scheduled event "Live Event with Ilana Jacqueline – Rare Disease Week Special Presentation" has been temporarily postponed due to unforeseen medical issues faced by the author, Ilana Jacqueline. We understand the importance of this event and are committed to rescheduling it once circumstances allow. We apologize for any inconvenience this may cause and appreciate your understanding during this time. Please stay tuned for updates on this event. The Book Club Fundraiser is scheduled to go forward March 5th. See the following event information.
ACMCRN Book Club Fundraiser – Hosted by Lori Verton
Date and Time: Wednesday, March 5, 2025 (6-8 week series)
Registration Required: Sign Up Here
Cost: $45 USD (Includes paperback book + all sessions)
Seats: Limited to 25 Participants!
What You’ll Get:
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A paperback copy of Medical Gaslighting, sent directly to your home.
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Weekly book club discussions led by Lori Verton.
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A chance to explore how the book’s themes apply to your own healthcare experiences.
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Hands-on tools for navigating medical challenges.
💡 Join us in this engaging, interactive series as we explore Ilana’s insights together!
2025 Rare Disease Day Presentation
Date: Friday, February 28, 2025
Time: 7:00 - 8:30 PM EST
Zoom Link: Join Here
Meeting ID: 889 7467 9836
Hosts: ACMCRN Team
Topics covered:
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Key advancements in Arachnoiditis research
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ACMCRN’s 2025 goals for patient advocacy & peer support
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Ways to get involved in future projects