Welcome to our comprehensive file section, a treasure trove of invaluable resources designed to empower and educate our community. Dive into the depths of knowledge with our Arachnoiditis Literature Review, where you'll find insights that unravel the complexities of this condition. Explore the Brain & Spinal Cord Immune System section, delving into the intricate mechanisms that safeguard our grey matter. Gain clarity on Cerebral Spinal Fluid Leaks & Blockage with resources and videos that illuminate this intricate realm. Our Disabled Resources segment is a beacon of support, offering guidance and insights to navigate challenges. Discover the world of Implanted Devices, unraveling the do's, don'ts, and secrets they hold. Immerse yourself in Misc Files & Articles, an array of perspectives and studies that enrich your understanding. Lastly, embark on a journey of Practical Pain Management, where clinical updates and emotional insights harmonize. Your quest for knowledge and empowerment begins here, within our meticulously curated file section.
Arachnoiditis Articles and Literature Reviews
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The leptomeninges as a critical organ for normal CNS development and function First patient and public involved systematic literature review of arachnoiditis (chronic meningitis)
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Spinal Adhesive Arachnoiditis: A Literature Review - PMC (nih.gov)
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Corticosteroid Therapy in Acute and Subacute Arachnoiditis – A Case Series
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A Novel Technique Using Magnetic Resonance Imaging in the Supine and Prone Positions for Diagnosing Lumbar Adhesive
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Editorial for “MRI Findings of Arachnoiditis, Revisited. Is Classification Needed?”
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Lumbar arachnoiditis: Does imaging associate with clinical features-Science Direct
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PROTOCOLES D'URGENCE ET DE DÉMARRAGE POUR L'ARACHNOIDITE ADHÉSIVE LOMBO-SACREE (AA)
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A Novel Technique Using Magnetic Resonance Imaging in the Supine and Prone Positions for Diagnosing Lumbar Adhesive Arachnoiditis: A Preliminary Study
Brain and Spinal Cord
Excellent piece on how the brain and spinal cord possess their own immune system.
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Guardians of the brain: how a special immune system protects our grey matter (nature.com)The Effect of L-Arginine on Dural Healing
Cerebral Spinal Fluid Leaks and Blockage Resources and videos
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Spontaneous Low Pressure, Low CSF Volume Headache: Spontaneous CSF Leaks
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Spontaneous Intracranial Hypotension: 10 Myths and Misconceptions
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Bulletin #19: Spinal Fluid Seepage
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Bulletin #76: Why Adhesive Arachnoiditis Causes Spinal Fluid Leaks
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Bulletin #77: Complications and Treatment of AA Spinal Fluid Leaks
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Bulletin #47: Spinal Fluid Flow Exercises for AA Treatment
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Bulletin #74: Rocking Chair for CSF flow
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Bulletin #69: Acetazolamide for the treatment of high spinal pressure for blurry eyes, headaches, and dizziness
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Myelography Techniques for the Detection of Spinal CSF Leaks in Spontaneous Intracranial Hypotention
CSF Leaks videos from Spinal CSF Leak Canada
VIDEO #3-Dr. Farnaz Amoozegar, presented this talk on ”PDPH - Clinical Perspective from the Neurologist's Viewpoint” at our webinar on Chronic Iatrogenic Spinal CSF Leaks, on April 9, 2022.
Disability and Other Resources
Also see our members only community forum under "Disabled Resources" for more resources
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Navigating the Job Market with a Rare Disease: A Toolkit for Success
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Free Flights for Rare Disease PatientsFree Flights for Rare Disease Patients
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American Pain and Disability Foundation Patient Advocacy Services; Pain Patient Assistance; Pain Patient Education
EDS-Ehlers Danlos Syndrome
and Associated Connective Tissue Disorders
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Cusack Protocol for Connective Tissue Disorders
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Cusack Protocol Dosages chart
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Cusack Protocol Dosages- list
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FAQ- Debbie Johnson FAQ for Newcomers
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The skin in hypermobile Ehlers-Danlos syndrome – The Ehlers-Danlos Support UK
Implanted Devices
Misc. Files & Articles
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The Physiologic Effects of Pain on the Endocrine System - PMC (nih.gov)
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Don’t Call it a Miracle- The Movement to Cure Spinal Cord Injury
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Timing of Early Treatment of Neurological Deficits Post Intervention and Operative Spinal Procedures
Practical Pain Management
Dr. Tennant Handbooks and Other Papers
Dr. Tennant's Bulletins
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Bulletin 10 Naltrexone (LDN)
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Bulletin 15 3 Component Treatment to Tackle AA – 2021
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Bulletin 19 Spinal Fluid Seepage
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Bulletin 21 Best Drugs for AA and IPS Featured: Pregnenolone
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Bulletin 27 Recommended Starting Protocol
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Bulletin 61 (1 of 2) -MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners
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Bulletin 62 (2 of 2)-MRI diagnosis of Lumbar Adhesive Arachnoiditis (AA) for Primary Care Practitioners
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Bulletin 63 Symptom Criteria For a Diagnosis of Adhesive Arachnoiditis (AA)
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Bulletin 64 Are You Ready for Your Next Flare?
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Bulletin 65 Ancient History Underpins the Three Component Protocol (see bulletin 15)
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Bulletin 66 Steps to Take if You're Deteriorating
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Bulletin 67 What is Lumbar/Sacral Adhesive Arachnoiditis
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Bulletin 68 Protocol First- Then Try New Treatments
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Bulletin 69 Acetazolamide for Headaches, Blurred Vision, and Dizziness
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Bulletin 70 Time Frame and Process to Developing AA
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Bulletin 72 The “Empty Sac” Sign – What does it mean?
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Bulletin 73 Diet for AA
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Bulletin 74 Rocking Chair Therapy
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Bulletin 76 Why AA Causes CSF Leak
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Bulletin 77 Complications of CSF Leaks
Dr. Tennant Chronicles
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Chronicle 11 Foods that help heal an inflamed body
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Chronicle 102 INTRACTABLE PAIN SYNDROME (IPS) IS TREATED WITH A 4-COMPONENT PROTOCOL
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Chronicle 75 ELECTRO-MEDICAL (EM) THERAPY SERIES Part one of four ELECTRIC CURRENT (EC) THERAPY
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Chronicle 79 CRITICAL NECESSITY TO MAINTAIN HORMONE BLOOD LEVELS
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Chronicle 80 THE OLD-FASHIONED ESTROGEN SHOT
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Chronicles 81 IS KRATOM RIGHT FOR YOU?
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Chronicle 82 Symptom criteria for diagnosis of AA
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Chronicle 83 WHY AND WHAT YOU MUST KNOW ABOUT GABA
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Chronicle 86 Failure to differentiate between addiction, chronic pain, and IPS
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Chronicle 87 – How neurotransmitter-receptor systems relieve pain – Part 1
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Chronicle 88 – Neurotransmitters and receptors – Part 2
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Chronicle 89 – How to raise critical neurotransmitters – Part 3
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Chronicle 90 – Immediate pain relief with GABA – Part 4
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Chronicle 91 – Necessity to regenerate endorphin receptors – Part 5
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Chronicle 95 – Are you in palliative or curative care? – Part 1
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Chronicle 96 – Fallacies and misconceptions about palliative care – Part 2
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Chronicle 97 – Palliative Care- Presenting your case to family and physician – Part 3
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Chronicle 98 – IPS depletes cortisol-adrenal storage (reserve)
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Chronicle 99 – IPS patients have two kinds of pain: neuroinflammatory and neuropathic
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Chronicle 100 – Why high blood sugar (glucose) worsens pain
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Chronicle 101 – Metabolic complication of IPS: diabetes pre-diabetes, excess cholesterol
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Chronicle 102 – IPS is treated with a 4-component protocol